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	<title>Comments for ASpar stories</title>
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	<description>Our lives growing up with an Asperger parent</description>
	<lastBuildDate>Thu, 20 Aug 2009 15:38:29 +0000</lastBuildDate>
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		<title>Comment on An archtypical story by Sarah</title>
		<link>http://aspar.wordpress.com/2007/01/27/an-archtypical-story/#comment-805</link>
		<dc:creator>Sarah</dc:creator>
		<pubDate>Thu, 20 Aug 2009 15:38:29 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/2007/01/27/an-archtypical-story/#comment-805</guid>
		<description>Goodness me, this is so like my family it is astounding! I am engaged to a man i think has AS and in reading about it have seen that both my parents and my sister probably have AS too.  Your family life sounds just like mine was, even with all the trivial lying going on that could never be addressed.
My partner, luckily, is a lot calmer than my parents and i am hoping that with the use of good resourses I can support him and our children. thank you so much for sharing your story.
Sarah xxx</description>
		<content:encoded><![CDATA[<p>Goodness me, this is so like my family it is astounding! I am engaged to a man i think has AS and in reading about it have seen that both my parents and my sister probably have AS too.  Your family life sounds just like mine was, even with all the trivial lying going on that could never be addressed.<br />
My partner, luckily, is a lot calmer than my parents and i am hoping that with the use of good resourses I can support him and our children. thank you so much for sharing your story.<br />
Sarah xxx</p>
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		<title>Comment on Discussion by Ender</title>
		<link>http://aspar.wordpress.com/response-to-critics/#comment-794</link>
		<dc:creator>Ender</dc:creator>
		<pubDate>Sat, 11 Jul 2009 20:52:12 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/?page_id=35#comment-794</guid>
		<description>P.S.  I wonder if these ideas are spread too much with no consenting form of view would I myself never be able to adopt... or far worse, have a kid of my own taken away from me.  I plan to adopt as soon as I am able to finicially support a child (I am already able to emotionally, mentally, and all other ways, support a child, just don&#039;t quite have the money issue down yet, and might not for a while) and it would be horrible if everyone thought anyone with asperger&#039;s could never make a good dad.  Personally I think asperger&#039;s parents are ideal for asperger&#039;s kids, we are generally the only ones that can understand them real well.</description>
		<content:encoded><![CDATA[<p>P.S.  I wonder if these ideas are spread too much with no consenting form of view would I myself never be able to adopt&#8230; or far worse, have a kid of my own taken away from me.  I plan to adopt as soon as I am able to finicially support a child (I am already able to emotionally, mentally, and all other ways, support a child, just don&#8217;t quite have the money issue down yet, and might not for a while) and it would be horrible if everyone thought anyone with asperger&#8217;s could never make a good dad.  Personally I think asperger&#8217;s parents are ideal for asperger&#8217;s kids, we are generally the only ones that can understand them real well.</p>
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		<title>Comment on Discussion by Ender</title>
		<link>http://aspar.wordpress.com/response-to-critics/#comment-793</link>
		<dc:creator>Ender</dc:creator>
		<pubDate>Sat, 11 Jul 2009 20:39:03 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/?page_id=35#comment-793</guid>
		<description>Okay I have an aspie mom (probably never been formally diagnosed but she clearly fits almost all the traits and has several comorbid disorders) and an NT dad.  Can I, as an aspie, say that I am glad I always lived with my aspie mom.  My NT dad was always so obsessive about making me neurotypical, and it always stressed me out so much whenever I was over there.  Yes, there were some bad moments in my childhood because of this (my mom always spanked angry, never minded the spanking part so much (as I usually deserved them) but the angry part) but I would have been a nervous wreck living with my dad all the time.  Course... this probably isn&#039;t the perspective your looking for is it.</description>
		<content:encoded><![CDATA[<p>Okay I have an aspie mom (probably never been formally diagnosed but she clearly fits almost all the traits and has several comorbid disorders) and an NT dad.  Can I, as an aspie, say that I am glad I always lived with my aspie mom.  My NT dad was always so obsessive about making me neurotypical, and it always stressed me out so much whenever I was over there.  Yes, there were some bad moments in my childhood because of this (my mom always spanked angry, never minded the spanking part so much (as I usually deserved them) but the angry part) but I would have been a nervous wreck living with my dad all the time.  Course&#8230; this probably isn&#8217;t the perspective your looking for is it.</p>
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		<title>Comment on Short-takes on AS mothers by Cynthia</title>
		<link>http://aspar.wordpress.com/2007/01/27/short-takes-on-as-mothers/#comment-768</link>
		<dc:creator>Cynthia</dc:creator>
		<pubDate>Thu, 04 Jun 2009 15:39:52 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/2007/01/27/short-takes-on-as-mothers/#comment-768</guid>
		<description>I understand how you feel. I self-diagnosed myself with Asperger&#039;s a year ago. All my life I&#039;ve been &quot;strange&quot;; I&#039;ve had to really work hard at interpreting social cues, to not talk about the same thing over and over again, to look people in the eyes, and not to fidget and seem distracted when I&#039;m having a conversation. And sometimes, to my dismay, I sometimes blurt out inappropriate comments. Thus, sometimes I tend to rub people the wrong way. And yes, social situations are hell for me; like you, I often rehearse what to say and to think before I say something. I really don&#039;t like spontaneous changes and I like to know before hand when something out of the ordinary comes up.
I often find myself obsessing with certain topics and I find it difficult to multi-task.
Ten years ago, my sister read a book about Asperger&#039;s and mentioned that I might have it; I was in denial, of course. Now, at age 30, I am proud of who I am and not ashamed of myself because I&#039;m not neurotypical. I still struggle with things other people take for granted.
I am married and the mother of a 17-month old toddler. My husband always seemed to accept my eccentricities without question; he doesn&#039;t have Asperger&#039;s but he&#039;s on the geeky side himself, he&#039;s really into science and computers.
My daughter, although very young, doesn&#039;t appear to show any Asperger&#039;s at all. Too bad there&#039;s hardly any literature out there at all about Aspie parents raising NT children.</description>
		<content:encoded><![CDATA[<p>I understand how you feel. I self-diagnosed myself with Asperger&#8217;s a year ago. All my life I&#8217;ve been &#8220;strange&#8221;; I&#8217;ve had to really work hard at interpreting social cues, to not talk about the same thing over and over again, to look people in the eyes, and not to fidget and seem distracted when I&#8217;m having a conversation. And sometimes, to my dismay, I sometimes blurt out inappropriate comments. Thus, sometimes I tend to rub people the wrong way. And yes, social situations are hell for me; like you, I often rehearse what to say and to think before I say something. I really don&#8217;t like spontaneous changes and I like to know before hand when something out of the ordinary comes up.<br />
I often find myself obsessing with certain topics and I find it difficult to multi-task.<br />
Ten years ago, my sister read a book about Asperger&#8217;s and mentioned that I might have it; I was in denial, of course. Now, at age 30, I am proud of who I am and not ashamed of myself because I&#8217;m not neurotypical. I still struggle with things other people take for granted.<br />
I am married and the mother of a 17-month old toddler. My husband always seemed to accept my eccentricities without question; he doesn&#8217;t have Asperger&#8217;s but he&#8217;s on the geeky side himself, he&#8217;s really into science and computers.<br />
My daughter, although very young, doesn&#8217;t appear to show any Asperger&#8217;s at all. Too bad there&#8217;s hardly any literature out there at all about Aspie parents raising NT children.</p>
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		<title>Comment on Discussion by Laura</title>
		<link>http://aspar.wordpress.com/response-to-critics/#comment-761</link>
		<dc:creator>Laura</dc:creator>
		<pubDate>Fri, 08 May 2009 11:11:08 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/?page_id=35#comment-761</guid>
		<description>Thank you, thank you, thank you... Finding a website like this is an indescribable relief. Yes, there is controversy and debate, but what a gift for someone who has been looking for answers about their parent for so long. Yes we love them, and yes we hate them, and yes it has hurt us, and yes - we have fleetingly wonderful moments with them - but it is ultimately sharing our story that gives everything that we went through meaning. For so long we thought we were alone, and now we realise that so many others have walked the same silent painful paths through childhood... You can argue the semantics of knowing whether it&#039;s a PD or AS... At the end of the day, we are here because we are grieving the love that we could not give them and we could not receive from them. My father has not been been formally diagnosed with AS and I&#039;m sure he never will be, but that doesn&#039;t change the fact of how much hope I have found here... Just because you know or don&#039;t know the cause of death doesn&#039;t make the pain of losing someone any easier... You don&#039;t weep any differently for a loved one who has hung themselves  as opposed to one that has been hit by a car... You still weep... Likewise him never being formally diagnosed doesn&#039;t mean that there is any less sadness.</description>
		<content:encoded><![CDATA[<p>Thank you, thank you, thank you&#8230; Finding a website like this is an indescribable relief. Yes, there is controversy and debate, but what a gift for someone who has been looking for answers about their parent for so long. Yes we love them, and yes we hate them, and yes it has hurt us, and yes &#8211; we have fleetingly wonderful moments with them &#8211; but it is ultimately sharing our story that gives everything that we went through meaning. For so long we thought we were alone, and now we realise that so many others have walked the same silent painful paths through childhood&#8230; You can argue the semantics of knowing whether it&#8217;s a PD or AS&#8230; At the end of the day, we are here because we are grieving the love that we could not give them and we could not receive from them. My father has not been been formally diagnosed with AS and I&#8217;m sure he never will be, but that doesn&#8217;t change the fact of how much hope I have found here&#8230; Just because you know or don&#8217;t know the cause of death doesn&#8217;t make the pain of losing someone any easier&#8230; You don&#8217;t weep any differently for a loved one who has hung themselves  as opposed to one that has been hit by a car&#8230; You still weep&#8230; Likewise him never being formally diagnosed doesn&#8217;t mean that there is any less sadness.</p>
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		<title>Comment on Short-takes on AS mothers by Lauren</title>
		<link>http://aspar.wordpress.com/2007/01/27/short-takes-on-as-mothers/#comment-744</link>
		<dc:creator>Lauren</dc:creator>
		<pubDate>Sat, 11 Apr 2009 04:14:32 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/2007/01/27/short-takes-on-as-mothers/#comment-744</guid>
		<description>I stumbled upon this site while looking for information on parenting with asperger&#039;s syndrome. honestly, it&#039;s a little tough to take but it&#039;s been interesting. I suspect that my father has asperger&#039;s syndrome. I was always told how much like him I was even though we weren&#039;t around each other much. He had obsessive interests, became disproportionately upset at his things being moved, repeated words and was rigid about definitions. He drank too much in order to grease the social wheels; took up football in high school and college to try and fit in but it didn&#039;t work. no matter how well he played he was always out of the group. When he and my mother divorced he moved away to find work and it was &quot;out of sight, out of mind&quot; where i was concerned. He was never diagnosed with anything but depression but i belive that had more to do knowledge and research available at the time. 

I have two sons now. One is 5 and autistic and the other is 18mos old and is quite advanced and unusual so not &quot;typical&quot; but he does not appear to be autistic. I struggle with sensory sensitivities and rigid thinking. I don&#039;t really know how to &quot;play&quot; and i often have trouble keeping track of things. It takes me a while to figure out what the baby wants sometimes. The thing is, I am a much better parent than my father ever was and I figured out how to do this without the benefit of early diagnosis or therapies. I knew that i had trouble with relationships and so my logical mind decided that if i had a baby to care for i should just hold him as much as possible and try different things when he cried until it stopped. The kids seemed happy with this arrangement. I dislike social functions but I have been to more of my 5yo&#039;s parent participation days at school than any of the other mothers. I simply rehearse a few basic conversations before i show up and do my best. I make sure to schedule quiet times in my day before the children come home so that I am not too flustered by their noise. I make a point of keeping mental lists of what they like and their reactions to things. Why do I do all of this? Because I am autistic person, not an autistic asshole. My father never thought to use his fascinating, brilliant mind to create a system for interacting with others. Why, because he was an asshole. Either that or some very bad things happened to him which damaged him much more than asperger&#039;s ever could have. 

 Yes, there are challenges I face because of his neglect. I fear that people will leave me. I believed that i was disposable and that I wasn&#039;t interesting enough to earn my father&#039;s love. I learned to think of myself as an annoyance. There are other things I have learned. I&#039;ve learned compassion for my father. I feel sad that he has lost his chance at a relationship with me.  Perhaps my children will grow up having particular complaints about my parenting. They seem happy now though, and my family members and confidants tell me that I am doing well. I am learning much from reading here and I wonder how many people have learned to hate a thing - a way of being- rather than feel anger towards a person who was cruel or inept. That isn&#039;t to say there are no problems that come with asperger&#039;s. i&#039;ll be first to admit that there are many. I just don&#039;t believe that they cannot be worked with, around, and through. I assure you that we are fully human and have a full range of emotions and free will. My father is a flawed human and failed parent. I believe that I can be something other than what he was.</description>
		<content:encoded><![CDATA[<p>I stumbled upon this site while looking for information on parenting with asperger&#8217;s syndrome. honestly, it&#8217;s a little tough to take but it&#8217;s been interesting. I suspect that my father has asperger&#8217;s syndrome. I was always told how much like him I was even though we weren&#8217;t around each other much. He had obsessive interests, became disproportionately upset at his things being moved, repeated words and was rigid about definitions. He drank too much in order to grease the social wheels; took up football in high school and college to try and fit in but it didn&#8217;t work. no matter how well he played he was always out of the group. When he and my mother divorced he moved away to find work and it was &#8220;out of sight, out of mind&#8221; where i was concerned. He was never diagnosed with anything but depression but i belive that had more to do knowledge and research available at the time. </p>
<p>I have two sons now. One is 5 and autistic and the other is 18mos old and is quite advanced and unusual so not &#8220;typical&#8221; but he does not appear to be autistic. I struggle with sensory sensitivities and rigid thinking. I don&#8217;t really know how to &#8220;play&#8221; and i often have trouble keeping track of things. It takes me a while to figure out what the baby wants sometimes. The thing is, I am a much better parent than my father ever was and I figured out how to do this without the benefit of early diagnosis or therapies. I knew that i had trouble with relationships and so my logical mind decided that if i had a baby to care for i should just hold him as much as possible and try different things when he cried until it stopped. The kids seemed happy with this arrangement. I dislike social functions but I have been to more of my 5yo&#8217;s parent participation days at school than any of the other mothers. I simply rehearse a few basic conversations before i show up and do my best. I make sure to schedule quiet times in my day before the children come home so that I am not too flustered by their noise. I make a point of keeping mental lists of what they like and their reactions to things. Why do I do all of this? Because I am autistic person, not an autistic asshole. My father never thought to use his fascinating, brilliant mind to create a system for interacting with others. Why, because he was an asshole. Either that or some very bad things happened to him which damaged him much more than asperger&#8217;s ever could have. </p>
<p> Yes, there are challenges I face because of his neglect. I fear that people will leave me. I believed that i was disposable and that I wasn&#8217;t interesting enough to earn my father&#8217;s love. I learned to think of myself as an annoyance. There are other things I have learned. I&#8217;ve learned compassion for my father. I feel sad that he has lost his chance at a relationship with me.  Perhaps my children will grow up having particular complaints about my parenting. They seem happy now though, and my family members and confidants tell me that I am doing well. I am learning much from reading here and I wonder how many people have learned to hate a thing &#8211; a way of being- rather than feel anger towards a person who was cruel or inept. That isn&#8217;t to say there are no problems that come with asperger&#8217;s. i&#8217;ll be first to admit that there are many. I just don&#8217;t believe that they cannot be worked with, around, and through. I assure you that we are fully human and have a full range of emotions and free will. My father is a flawed human and failed parent. I believe that I can be something other than what he was.</p>
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		<title>Comment on Discussion by Clare</title>
		<link>http://aspar.wordpress.com/response-to-critics/#comment-706</link>
		<dc:creator>Clare</dc:creator>
		<pubDate>Mon, 16 Feb 2009 16:36:12 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/?page_id=35#comment-706</guid>
		<description>I have also just found this site and am so delighted that finally this special group of people has been recognised = the children of Aspies. Hello to all, how wonderful to find you.    I have been to Asperger&#039;s support groups and read everything I can about the condition but the children of these people have until now been overlooked. There seems to be an emphasis on diagnosing children and helping parents - yeah great maybe they can cure it.  So I am really shocked to read this controversy raging on this site, this one place I have found that addresses my curious, unique and unhappy point of view.  My father - an Aspie- was an engineer and a hugely difficult person to be around.  I struggle everyday and I&#039;m 46 - I can&#039;t answer the phone for fear he&#039;s there and I&#039;ll get another lecture about his life.  

There were three of us kids and he struggled with every aspect of parenting.  My mother struggled with him and we struggled with it all.  It&#039;s a double whammy for kids like us, a difficult parent, and the often failing relationship of our parents.   

All my life I&#039;ve struggled with the repetitive hurt that my father causes me and the guilt I feel if I defend myself or try to get away from him.  Guilt and suffering. I&#039;m not going to defend the way I feel.  I have a brother and nephew with the condition and friends who are mothers and wives dealing with it too - and I wish them the best, the very very best and I deeply emphasise with those that have the condition, there&#039;s no doubt it can be hard to live with.    Celebrate it if you have it, but remember, you must, like all of us, be aware of the effect you have on others, that is called empathy, and it&#039;s crucial to successful human interactions.  In this particular case, here on this website, it&#039;s not all about you.</description>
		<content:encoded><![CDATA[<p>I have also just found this site and am so delighted that finally this special group of people has been recognised = the children of Aspies. Hello to all, how wonderful to find you.    I have been to Asperger&#8217;s support groups and read everything I can about the condition but the children of these people have until now been overlooked. There seems to be an emphasis on diagnosing children and helping parents &#8211; yeah great maybe they can cure it.  So I am really shocked to read this controversy raging on this site, this one place I have found that addresses my curious, unique and unhappy point of view.  My father &#8211; an Aspie- was an engineer and a hugely difficult person to be around.  I struggle everyday and I&#8217;m 46 &#8211; I can&#8217;t answer the phone for fear he&#8217;s there and I&#8217;ll get another lecture about his life.  </p>
<p>There were three of us kids and he struggled with every aspect of parenting.  My mother struggled with him and we struggled with it all.  It&#8217;s a double whammy for kids like us, a difficult parent, and the often failing relationship of our parents.   </p>
<p>All my life I&#8217;ve struggled with the repetitive hurt that my father causes me and the guilt I feel if I defend myself or try to get away from him.  Guilt and suffering. I&#8217;m not going to defend the way I feel.  I have a brother and nephew with the condition and friends who are mothers and wives dealing with it too &#8211; and I wish them the best, the very very best and I deeply emphasise with those that have the condition, there&#8217;s no doubt it can be hard to live with.    Celebrate it if you have it, but remember, you must, like all of us, be aware of the effect you have on others, that is called empathy, and it&#8217;s crucial to successful human interactions.  In this particular case, here on this website, it&#8217;s not all about you.</p>
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		<title>Comment on Short-takes on AS mothers by suzanne</title>
		<link>http://aspar.wordpress.com/2007/01/27/short-takes-on-as-mothers/#comment-702</link>
		<dc:creator>suzanne</dc:creator>
		<pubDate>Wed, 28 Jan 2009 00:42:01 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/2007/01/27/short-takes-on-as-mothers/#comment-702</guid>
		<description>having been raised by an asperger&#039;s mother i recommend that others in the same situation give up on reconciling or having an actual relationship with the parent. that sounds harsh, but since it not going to change they are banging their heads against the wall. it is a relief to look at the person as damaged and, if in their company, being as gracious as possible. it is also a relief to read these accounts, since as a child you are really isolated and don&#039;t understand what is happening. i could write a book including all the weird anecdotes regarding my mother, and yes, my dad is in almost complete denial. they are now in their 80&#039;s and her increasing dementia is actually improving her personality. she isn&#039;t as hostile, and doesn&#039;t have the energy to put into being difficult and rude. it people with this condition take offense by being complained about and chidren raised by them have nightmarish childhoods, how&#039;s about asperger&#039;s sufferers not have children? oh, i said a non-pc thing!  at any rate it wouldn&#039;t help a lot since many people are unaware there is anything wrong with them.</description>
		<content:encoded><![CDATA[<p>having been raised by an asperger&#8217;s mother i recommend that others in the same situation give up on reconciling or having an actual relationship with the parent. that sounds harsh, but since it not going to change they are banging their heads against the wall. it is a relief to look at the person as damaged and, if in their company, being as gracious as possible. it is also a relief to read these accounts, since as a child you are really isolated and don&#8217;t understand what is happening. i could write a book including all the weird anecdotes regarding my mother, and yes, my dad is in almost complete denial. they are now in their 80&#8217;s and her increasing dementia is actually improving her personality. she isn&#8217;t as hostile, and doesn&#8217;t have the energy to put into being difficult and rude. it people with this condition take offense by being complained about and chidren raised by them have nightmarish childhoods, how&#8217;s about asperger&#8217;s sufferers not have children? oh, i said a non-pc thing!  at any rate it wouldn&#8217;t help a lot since many people are unaware there is anything wrong with them.</p>
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		<title>Comment on Discussion by Cathy</title>
		<link>http://aspar.wordpress.com/response-to-critics/#comment-673</link>
		<dc:creator>Cathy</dc:creator>
		<pubDate>Tue, 02 Sep 2008 14:44:46 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/?page_id=35#comment-673</guid>
		<description>I just found this site and am thrilled that the children of Asperger parents are finally speaking up. My mother, who has a PhD in mathematics, is an Asperger -- just diagnosed at the age of 76. ... My childhood was just God awful. And, now, she&#039;s begging to move in with me. Yikes!

I just don&#039;t understand why some people are posting here defending AS parents. If they didn&#039;t grow up with our moms or dads, how on earth do they know what we went through, or are currently going through? People are just so odd! (Hey, but not as odd as our parents, right?)</description>
		<content:encoded><![CDATA[<p>I just found this site and am thrilled that the children of Asperger parents are finally speaking up. My mother, who has a PhD in mathematics, is an Asperger &#8212; just diagnosed at the age of 76. &#8230; My childhood was just God awful. And, now, she&#8217;s begging to move in with me. Yikes!</p>
<p>I just don&#8217;t understand why some people are posting here defending AS parents. If they didn&#8217;t grow up with our moms or dads, how on earth do they know what we went through, or are currently going through? People are just so odd! (Hey, but not as odd as our parents, right?)</p>
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		<title>Comment on How stories are collected by Patti Owski</title>
		<link>http://aspar.wordpress.com/methodology/#comment-658</link>
		<dc:creator>Patti Owski</dc:creator>
		<pubDate>Sun, 20 Jul 2008 20:52:48 +0000</pubDate>
		<guid isPermaLink="false">http://aspar.wordpress.com/?page_id=37#comment-658</guid>
		<description>I am almost 50 years old and have only recently been able to identify my father&#039;s symptoms as belonging to AS.  He has never been formally diagnosed, but all our lives, my brother and I knew my dad was different. We just attributed the symptoms to &quot;he&#039;s just being dad.&quot;  We never knew any better.  

As children, we were never good enough.  Our self-esteem was so incredibly low that we would debase ourselves constantly.  Dad would fly into rages in public places and we would sit there in stunned silence wondering what just happened.   It was never his fault, it was always our fault or the fault whomever happened to get in his way.  Many of his comments were inappropriate.  He once asked my father-in-law if he got his coat from the Salvation Army Store.  My father-in-law never spoke to him again.
We could never have a two-way conversation with him.
When I was in college, I went to him to tell him I got an &quot;A&quot; in my history class.  He began immediately to talk about himself.  All I wanted was for him to tell me he was proud of me.  The rest of the time he rambled incessantly about his own experiences in high school and went off on tangents about himself.  I never understood why he did that until recently.  

Most recently, dad had major surgery.  Up to that time, my mother who has Alzheimer&#039;s Disease was living with him.   He allowed her to sit on the porch by herself while he went to the store to get a newspaper.  Of course, when he returned she was missing and the police were called and ultimately returned her.  This did not only happen once, it happened five other times.  He saw no need to keep her on her medication or to follow medical advice for her care.

When my dad had surgery and was hospitalized, my brother and I saw it as an opportunity to put my mom in a protected environment.  Since we had Power of Attorney, we took over her care while dad was incapacitated.  The problem was that when he returned home, he wanted to remove her from nursing care.  Since then, we have had to play hardball with him.  We now have a lawyer and are going to court to get guardianship of my mom.  He has basically disowned us.  We could not reason with him.  He saw no need for anyone else to care for my mom.  We could not believe he could not grasp the severity of her condition or acknowledge his past failures to care for her.  It was as though he had tunnel vision; only seeing what he wanted and not being able to see what we were saying.  

As it stands today, we are not on speaking terms.  We have no animosity toward him because we now understand more fully what is happening.   I hope that before he dies, we can somehow reconcile(he is 88 years old).</description>
		<content:encoded><![CDATA[<p>I am almost 50 years old and have only recently been able to identify my father&#8217;s symptoms as belonging to AS.  He has never been formally diagnosed, but all our lives, my brother and I knew my dad was different. We just attributed the symptoms to &#8220;he&#8217;s just being dad.&#8221;  We never knew any better.  </p>
<p>As children, we were never good enough.  Our self-esteem was so incredibly low that we would debase ourselves constantly.  Dad would fly into rages in public places and we would sit there in stunned silence wondering what just happened.   It was never his fault, it was always our fault or the fault whomever happened to get in his way.  Many of his comments were inappropriate.  He once asked my father-in-law if he got his coat from the Salvation Army Store.  My father-in-law never spoke to him again.<br />
We could never have a two-way conversation with him.<br />
When I was in college, I went to him to tell him I got an &#8220;A&#8221; in my history class.  He began immediately to talk about himself.  All I wanted was for him to tell me he was proud of me.  The rest of the time he rambled incessantly about his own experiences in high school and went off on tangents about himself.  I never understood why he did that until recently.  </p>
<p>Most recently, dad had major surgery.  Up to that time, my mother who has Alzheimer&#8217;s Disease was living with him.   He allowed her to sit on the porch by herself while he went to the store to get a newspaper.  Of course, when he returned she was missing and the police were called and ultimately returned her.  This did not only happen once, it happened five other times.  He saw no need to keep her on her medication or to follow medical advice for her care.</p>
<p>When my dad had surgery and was hospitalized, my brother and I saw it as an opportunity to put my mom in a protected environment.  Since we had Power of Attorney, we took over her care while dad was incapacitated.  The problem was that when he returned home, he wanted to remove her from nursing care.  Since then, we have had to play hardball with him.  We now have a lawyer and are going to court to get guardianship of my mom.  He has basically disowned us.  We could not reason with him.  He saw no need for anyone else to care for my mom.  We could not believe he could not grasp the severity of her condition or acknowledge his past failures to care for her.  It was as though he had tunnel vision; only seeing what he wanted and not being able to see what we were saying.  </p>
<p>As it stands today, we are not on speaking terms.  We have no animosity toward him because we now understand more fully what is happening.   I hope that before he dies, we can somehow reconcile(he is 88 years old).</p>
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